Genetics and global public health : sickle cell and thalassaemia / edited by Simon M. Dyson and Karl Atkin.

Sickle cell and thalassaemia

London : Routledge, 2017.

vi, 211 pages ; 25 cm

This book was donated as part of the Sickle Cell Society archive held by Wellcome Collection, reference SA/SCS https://wellcomecollection.org/works/erermr9

"First published 2012 by Routledge ... First issued in paperback 2017"--From title page verso.

Copy 1. Donor: Sickle Cell Society.

Includes bibliographical references and index.

Sickle cell and thalassaemia: global public health issues come of age / Simon M. Dyson, Karl Atkin -- Informing choice or teaching submission to medical authority: a case study of adolescent transitioning for sickle cell patients / Carolyn Moxley Rouse -- 'He's the dad isn't he?' Gender, race and the politics of prenatal screening / Kate Reed -- 'All her children are born that way': gendered experiences of stigma in families affected by sickle cell disorder in rural Kenya / Vicki M. Marsh, Dorcas M. Kamuya, Sassy S. Molyneux -- Familial influence on antenatal and newborn haemoglobinopathy screening / Fiona Ulph [and three others] -- Ethical implications and practical considerations of ethically targeted screening for genetic disorders: the case of hemoglobinopathy screening / Cynthia F. Hinton, Althea M. Grant, Scott D. Grosse -- Living with sickle cell disease: traversing 'race' and identity / Charmaine D. Royal [and three others] -- Respect, trust, and the management of sickle cell disease pain in hospital: comparative analysis of concern-raising behaviors, preliminary model, and agenda for international collaborative research to inform practice / James Elander, Mary Catherine Beach, Carlton Haywood Jr -- Race and social attitudes about sickle cell disease / Shawn M. Bediako, Kimberly R. Moffitt -- Barriers to conceiving sibling donors for sickle cell disease: perspectives from patients and parents / Gina A. Jae [and five others] -- Organized ambivalence: when sickle cell disease and stem cell research converge / Ruha Benjamin -- 'I can die today, I can die tomorrow': lay perceptions of sickle cell disease in Kumasi, Ghana at a point of transition / Jemima A. Dennis-Antwi [and three others] -- Feasibility of preconception screening for thalassaemia in Indonesia: exploring the opinion of Javanese mothers / Costrie Ganes Widayanti [and five others] -- Sickle cell and thalassaemia: why social science is critical to improving care and service support / Simon M. Dyson, Karl Atkin.